BMC Palliative Care; 2018, 17 (1), 63
Mills, Jason; Wand, Timothy; Fraser, Jennifer A
The aim of the present study was to explore the
meaning and practice of self-care as described by palliative care nurses and
doctors in Australia. The
findings provide a detailed account of the context and complexity
of effective self-care practice previously lacking in the literature.
Fulltext available in BMC Palliative Care
A current awareness bulletin produced by the library service at Arthur Rank Hospice
Friday, 18 May 2018
Palliative care for homeless people: a systematic review of the concerns, care needs and preferences, and the barriers and facilitators for providing palliative care
BMC Palliative Care; 2018, 17 (1) 67
Klop, Hanna T; de Veer, Anke J E; van Dongen, Sophie I; Francke, Anneke L; Rietjens, Judith A C; Onwuteaka-Philipsen, Bregje D
This systematic review aims to summarize evidence about the concerns, palliative care needs and preferences of homeless people, as well as barriers and facilitators for delivering high quality palliative care.
Fulltext available in BMC Palliative Care
Klop, Hanna T; de Veer, Anke J E; van Dongen, Sophie I; Francke, Anneke L; Rietjens, Judith A C; Onwuteaka-Philipsen, Bregje D
This systematic review aims to summarize evidence about the concerns, palliative care needs and preferences of homeless people, as well as barriers and facilitators for delivering high quality palliative care.
Fulltext available in BMC Palliative Care
Family carers' experiences of coping with the deaths of adults in home settings: A narrative analysis of carers' relevant background worries
Palliative
Medicine; 2018, 32 (5), 950-959
Thomas, Carol; Turner, Mary; Payne, Sheila; et al
The aim of this qualitative cross-sectional observational study was to illustrate the relevance of 'relevant background worries' in family carers' accounts of caring at home for a dying adult. Four case studies are presented where the worries constituted psychosocial factors that impacted on caregivers' actions and emotional well-being. Two themes are discussed: (1) whether relevant background worries are important enough to be identified and responded to and (2) how such worries could be picked up and managed by professionals. It is argued that the quality of clinical practice could be improved if specialist palliative care teams in community contexts both identified and responded to significant support needs associated with family carers' relevant background worries.
Thomas, Carol; Turner, Mary; Payne, Sheila; et al
The aim of this qualitative cross-sectional observational study was to illustrate the relevance of 'relevant background worries' in family carers' accounts of caring at home for a dying adult. Four case studies are presented where the worries constituted psychosocial factors that impacted on caregivers' actions and emotional well-being. Two themes are discussed: (1) whether relevant background worries are important enough to be identified and responded to and (2) how such worries could be picked up and managed by professionals. It is argued that the quality of clinical practice could be improved if specialist palliative care teams in community contexts both identified and responded to significant support needs associated with family carers' relevant background worries.
Tactile massage reduces rescue doses for pain and anxiety: an observational study
BMJ Supportive & Palliative Care; 2018, 8(1) 30-33
Pedersen, Karina; Björkhem-Bergman, Linda
This was an observational study at a hospice ward in Sweden in which forty-one palliative patients were offered TM, at an average of three treatments per patient. Before and after every treatment, self-assessed pain, well-being and anxiety according to the Edmonton Symptom Assessment Scale (0-10) were recorded. The authors report that TM reduced the need for administration of rescue doses for pain and anxiety and improved well-being, although they suggest larger randomised studies with parallel control groups are needed to confirm the findings.
Available in print in Arthur Rank Hospice Library, Cambridge
Pedersen, Karina; Björkhem-Bergman, Linda
This was an observational study at a hospice ward in Sweden in which forty-one palliative patients were offered TM, at an average of three treatments per patient. Before and after every treatment, self-assessed pain, well-being and anxiety according to the Edmonton Symptom Assessment Scale (0-10) were recorded. The authors report that TM reduced the need for administration of rescue doses for pain and anxiety and improved well-being, although they suggest larger randomised studies with parallel control groups are needed to confirm the findings.
Available in print in Arthur Rank Hospice Library, Cambridge
Persistent inequalities in Hospice at Home provision
BMJ Supportive & Palliative Care; February 2018
Buck, Jackie; Webb, Liz; Moth, Lorraine; Morgan, Lynn; Barclay, Stephen
The aim of this study was to describe the nature and scope of a new Hospice at Home (H@H) service and to identify its equality of provision. Results showed that demand outstripped supply with twice as many night care episodes requested as were provided. Inequalities in access to the service related to underlying diagnosis and socioeconomic status. The authors conclude that there is significant unmet need and potentially large latent demand for the H@H service.
Fulltext available in BMJ Supportive and Palliative Care
Available in print in Arthur Rank Hospice Library, Cambridge
Buck, Jackie; Webb, Liz; Moth, Lorraine; Morgan, Lynn; Barclay, Stephen
The aim of this study was to describe the nature and scope of a new Hospice at Home (H@H) service and to identify its equality of provision. Results showed that demand outstripped supply with twice as many night care episodes requested as were provided. Inequalities in access to the service related to underlying diagnosis and socioeconomic status. The authors conclude that there is significant unmet need and potentially large latent demand for the H@H service.
Fulltext available in BMJ Supportive and Palliative Care
Available in print in Arthur Rank Hospice Library, Cambridge
Integrating palliative care into neurology services: what do the professionals say?
BMJ Supportive & Palliative Care, 2018, 8 (1) 41-44
Hepgul, Nilay; Gao, Wei; Evans, Catherine J; et al
Here the authors present survey results describing the current levels of collaboration between neurology and palliative care services and exploring the views of professionals towards a new short-term integrated palliative care service (SIPC). They suggest their results demonstrate the opportunity to increase collaboration between the services for people with progressive neurological conditions, and the acceptability of SIPC as a model to support this.
Hepgul, Nilay; Gao, Wei; Evans, Catherine J; et al
Here the authors present survey results describing the current levels of collaboration between neurology and palliative care services and exploring the views of professionals towards a new short-term integrated palliative care service (SIPC). They suggest their results demonstrate the opportunity to increase collaboration between the services for people with progressive neurological conditions, and the acceptability of SIPC as a model to support this.
Prevalence of hyponatremia in inpatients with incurable and life-limiting diseases and its association with physical symptoms-a retrospective descriptive study
Supportive
Care in Cancer; 2018, 26 (1) 213-222
Kremeike, Kerstin; Wetter, Ricarda; Voltz, Raymond; et al
This study aims to describe the prevalence of hyponatremia, associated symptoms, and symptom intensity in inpatients with hyponatremia receiving specialist palliative care (SPC). More than one third of all SPC patients showed a hyponatremia, and the hyponatremia grade was associated with symptom burden and symptom intensity.
Kremeike, Kerstin; Wetter, Ricarda; Voltz, Raymond; et al
This study aims to describe the prevalence of hyponatremia, associated symptoms, and symptom intensity in inpatients with hyponatremia receiving specialist palliative care (SPC). More than one third of all SPC patients showed a hyponatremia, and the hyponatremia grade was associated with symptom burden and symptom intensity.
Patient-centred goal setting in a hospice: a comparative case study of how health practitioners understand and use goal setting in practice
International Journal of Palliative Nursing; 2018, 24 (3) 115-122
Boa, Sally; Duncan, Edward; Haraldsdottir, Erna; Wyke, Sally
This was a comparative case study of 10 healthcare practitioners in one hospice in Scotland. From the results, the authors note that goal setting focused around what was seen as important from the health practitioner's perspective, rather than being patient-centred. They concluded that a more explicit, person-centred goal setting process may support practitioners more consistently in helping patients to identify their priorities and enhance their quality of life.
Boa, Sally; Duncan, Edward; Haraldsdottir, Erna; Wyke, Sally
This was a comparative case study of 10 healthcare practitioners in one hospice in Scotland. From the results, the authors note that goal setting focused around what was seen as important from the health practitioner's perspective, rather than being patient-centred. They concluded that a more explicit, person-centred goal setting process may support practitioners more consistently in helping patients to identify their priorities and enhance their quality of life.
Tuesday, 1 May 2018
My future wishes: Advance Care Planning (ACP) for people with dementia in all care settings
|
NHS England, 2018
This document aims to assist practitioners, providers and
health and social care commissioners create opportunities for people living
with dementia to develop an Advance Care Plan.
Please note the any changes that are made to this document in the future will be completed on the digital copy which can be found here:
|
Friday, 20 April 2018
palliativedrugs.com
BMJ Supportive & Palliative Care; Mar 2018;
vol. 8 (no. 1); p. 21-24
Wilcock,
Andrew; Charlesworth, SarahThis feature in the journal provides a selection of items that have featured in the News and Latest additions section of the website in recent months.
Register on the palliativedrugs.com website for more information and to receive updates.
Available in print in Arthur Rank Hospice Library, Cambridge
Developing design principles for a Virtual Hospice: improving access to care
BMJ Supportive & Palliative Care; Mar 2018; vol. 8 (no. 1); p. 53-57
Taylor, Andrea; French, Tara; Raman, Sneha
Taylor, Andrea; French, Tara; Raman, Sneha
This paper presents early-stage design work on a Virtual Hospice to improve access to services provided by Highland Hospice serving a largely remote and rural population in Scotland. A number of themes and barriers to accessing the Hospice's services were identified and, in response, an initial set of seven design principles was developed to improve prioritisation and decision making by ensuring alignment with research insights. It is suggested that this approach could be applied by other hospices facing similar challenges on delivering services in remote and rural settings.
Available in print in Arthur Rank Hospice Library, Cambridge
Management of hiccups in palliative care patients
BMJ Supportive & Palliative Care; Mar 2018; vol. 8 (no. 1); p. 1-6
Jeon, Yong Suk; Kearney, Alison Mary; Baker, Peter Graham
This article provides an evidence-based approach overview of the causes and treatment of this debilitating condition for such patients, with a management algorithm.
Available in print in Arthur Rank Hospice Library, Cambridge
Jeon, Yong Suk; Kearney, Alison Mary; Baker, Peter Graham
This article provides an evidence-based approach overview of the causes and treatment of this debilitating condition for such patients, with a management algorithm.
Available in print in Arthur Rank Hospice Library, Cambridge
Why is Meaning-Centered Group Psychotherapy (MCGP) effective? Enhanced sense of meaning as the mechanism of change for advanced cancer patients
Psycho-oncology;
Feb 2018; vol. 27 (no. 2); p. 654-660
Rosenfeld, Barry; Cham, Heining; Pessin, Hayley; Breitbart, William
The authors of this study looked at the data from two randomised controlled trials to advance understanding of the effectiveness of MCGP. They suggest the findings support MCGP as a way of enhancing a sense of meaning which improves quality of life and decreases psychological distress.
Rosenfeld, Barry; Cham, Heining; Pessin, Hayley; Breitbart, William
The authors of this study looked at the data from two randomised controlled trials to advance understanding of the effectiveness of MCGP. They suggest the findings support MCGP as a way of enhancing a sense of meaning which improves quality of life and decreases psychological distress.
Palliative care in dementia
Palliative Medicine; March 2018
This special issue of Palliative Medicine includes research aimed at increasing knowledge in the field of dementia. Included are both quantitative and qualitative studies that demonstrate sophisticated methodology and include at least one negative trial (Boogaard et al.2) because it's important to know what works and what does not. It includes the following topics:
View the full contents in Palliative Medicine
This special issue of Palliative Medicine includes research aimed at increasing knowledge in the field of dementia. Included are both quantitative and qualitative studies that demonstrate sophisticated methodology and include at least one negative trial (Boogaard et al.2) because it's important to know what works and what does not. It includes the following topics:
- The effect of two feedback strategies on perceived quality of end-of-life care and comfort in dying nursing home residents with dementia.
- Effects on pain of a stepwise multidisciplinary intervention (STA OP!) that targets pain and behavior
- How palliative care is understood in the context of dementia
Wednesday, 18 April 2018
Palliative care for those with neurological diseases
Palliative Medicine April 2018 32(4)
This special issue of Palliative Medicine includes research aimed at increasing knowledge in the field of neurological diseases. It includes the following topics:
This special issue of Palliative Medicine includes research aimed at increasing knowledge in the field of neurological diseases. It includes the following topics:
- Interventions for informal caregivers of people with motor neurone disease
- Views about assisted dying of people with Huntingdon's disease
- Palliative care triggers in progressive neurodegenerative conditions
Ten tips nephrologists wish the palliative care team knew about caring for patients with kidney disease
Journal
of Palliative Medicine; Apr 2018; vol. 21 (no. 4); p. 546-551
Bansal, Amar D; Leonberg-Yoo, Amanda; Schell, Jane O; Scherer, Jennifer S; Jones, Christopher A
Written by nephrologists and palliative care clinicians, this article will help PC providers to have a richer understanding of kidney disease-related symptom burden, disease trajectory, prognosis, and barriers to hospice enrollment for patients with CKD and end-stage renal disease.
Bansal, Amar D; Leonberg-Yoo, Amanda; Schell, Jane O; Scherer, Jennifer S; Jones, Christopher A
Written by nephrologists and palliative care clinicians, this article will help PC providers to have a richer understanding of kidney disease-related symptom burden, disease trajectory, prognosis, and barriers to hospice enrollment for patients with CKD and end-stage renal disease.
Diuretics combined with compression in resistant limb edema of advanced disease-a case series report
Journal
of Pain and Symptom Management 2018;
vol. 55 (no. 4); p. 1179-1183
Gradalski, Tomasz
This was a prospective observational study of 19 patients with severe bilateral leg edema resistant to parenteral diuretic therapy. Clinically meaningful results were reported leading the author to conclude that the combination of compression therapy with hypersaline diuretics could be considered as a valuable option for refractory cases of limb edema in advanced disease.
Gradalski, Tomasz
This was a prospective observational study of 19 patients with severe bilateral leg edema resistant to parenteral diuretic therapy. Clinically meaningful results were reported leading the author to conclude that the combination of compression therapy with hypersaline diuretics could be considered as a valuable option for refractory cases of limb edema in advanced disease.
Targeted palliative care day therapy interventions using modified MYMOP2 tool can improve outcomes for patients with non-malignant diseases
International
Journal of Palliative Nursing; Feb 2018; vol. 24 (no. 2); p. 92-95
Monnery, Daniel; Webb, Esther; Richardson, Lorna; Isaac, Jane; Chapman, Laura
The authors suggest that using the modified MYMOP2 tool to tailor and measure the outcome of holistic day therapy services results in a more sustained improvement for patients with non-malignant disease.
Monnery, Daniel; Webb, Esther; Richardson, Lorna; Isaac, Jane; Chapman, Laura
The authors suggest that using the modified MYMOP2 tool to tailor and measure the outcome of holistic day therapy services results in a more sustained improvement for patients with non-malignant disease.
The efficacy of complementary therapy for patients receiving palliative cancer care
International Journal of Palliative Nursing; Mar 2018; vol. 24 (no. 3); p. 146-151
Cedar, S H; White, Melanie; Atwal, Anita
60 patients participated in this study to evaluate the effect of complementary therapies on patient well-being and to explore concerns and factors that influenced well-being in order to improve service provision.
Cedar, S H; White, Melanie; Atwal, Anita
60 patients participated in this study to evaluate the effect of complementary therapies on patient well-being and to explore concerns and factors that influenced well-being in order to improve service provision.
The nourishing role: exploratory qualitative research revealing unmet support needs in family carers of patients with advanced cancer and eating problems
Cancer
Nursing; Mar 2018; vol. 41 (no. 2); p. 131-138
Hopkinson, Jane B
This study revealed that family carers needed information and support not only on how to provide nutritional care for the patients but also to manage their own nutritional risk.
Hopkinson, Jane B
This study revealed that family carers needed information and support not only on how to provide nutritional care for the patients but also to manage their own nutritional risk.
Deactivation of implantable cardioverter-defibrillators in heart failure: a systematic review
Journal
of Hospice and Palliative Nursing; Feb 2018; vol. 20 (no. 1); p. 63-73
Herman, Mark; Horner, Kathryn; Ly, Julie; Vayl, Yelizaveta
The aim of this systematic review was to identify problems that may delay the deactivation of implantable cardioverter-defibrillators and address possible considerations for their management to improve end-of-life care. The authors conclude that ongoing discussions with patients are needed as well as the development of a protocol or policy to guide care at the end of life.
Herman, Mark; Horner, Kathryn; Ly, Julie; Vayl, Yelizaveta
The aim of this systematic review was to identify problems that may delay the deactivation of implantable cardioverter-defibrillators and address possible considerations for their management to improve end-of-life care. The authors conclude that ongoing discussions with patients are needed as well as the development of a protocol or policy to guide care at the end of life.
Psychological ideas in palliative care: distress, adjustment and coping
European Journal of Palliative Care; Jan 2018; vol.
25 (no. 1); p. 26-31
Jenny Strachan
In the latest in this Psychology in Palliative Practice series, Jenny Strachan looks at distress, coping and adjustment and considers when is a reaction normal and when does it become a problem.
Fulltext available in European Journal of Palliative Care (contact library for login details)
Available in print in Arthur Rank Hospice Library, Cambridge
Barriers to palliative care for people with severe mental illness: exploring the views of clinical staff
European
Journal of Palliative Care; Jan 2018; vol. 25 (no. 1); p. 20-25
Jerwood, Jed; Phimister, Diane; Ward, Gillian; Holliday, Nikki; Coad, Jane
The first in a series of articles exploring inequalities in palliative care provision looks at end of life care for people with severe mental health illness. It considers the challenges and the opportunities for improving high quality, personalised care for all.
Fulltext available in European Journal of Palliative Care (contact library for login details)
Available in print in Arthur Rank Hospice Library, Cambridge
Jerwood, Jed; Phimister, Diane; Ward, Gillian; Holliday, Nikki; Coad, Jane
The first in a series of articles exploring inequalities in palliative care provision looks at end of life care for people with severe mental health illness. It considers the challenges and the opportunities for improving high quality, personalised care for all.
Fulltext available in European Journal of Palliative Care (contact library for login details)
Available in print in Arthur Rank Hospice Library, Cambridge
'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)
Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer 2018 March 29
Steven Dodd, Matt Hill, Nick Ockenden, Guillermo Perez
Algorta, Sheila Payne, Nancy Preston, Catherine Walshe
The aim of this research was to study the impact of a volunteer-provided befriending service for people in the last year of life and their families. The participants reported feeling less lonely, isolated and depressed or anxious.
Fulltext available in Supportive Care in Cancer
Fulltext available in Supportive Care in Cancer
Tuesday, 17 April 2018
Red blood cell transfusion in adult palliative care: a systematic review
Transfusion 2018, 58 (1): 233-241
Nicolas Chin-Yee, Joshua Taylor, Kaitlyn Rourke, Danika
Faig, Alexandra Davis, Dean Fergusson, Elianna Saidenberg
The authors of this review concluded that although RBC transfusions might provide some relief and improve subjective well-being, the size and magnitude of the effects and the risks are unclear with no high quality evidence to support and guide the use of this procedure in the palliative care population.
Friday, 16 February 2018
A second class ending: Exploring the barriers and championing outstanding end of life care for people who are homeless (discussion paper)
Care Quality Commission and Faculty for Homeless and Inclusion Health, November 2017
This paper explores the reasons why homeless people do not experience good care at the end of life and demonstrates that there are many opportunities to improve standards of care.
This paper explores the reasons why homeless people do not experience good care at the end of life and demonstrates that there are many opportunities to improve standards of care.
Fulltext available here
The effect of relaxation techniques on edema, anxiety and depression in post-mastectomy lymphedema patients undergoing comprehensive decongestive therapy: A clinical trial
PloS One 2018 13 (1): e0190231
Bahareh
Abbasi, Navid Mirzakhany, Leila Angooti Oshnari, Ashkan Irani, Samaneh Hosseinzadeh,
Seyed Mehdi Tabatabaei, Shahpar Haghighat
This
study aimed to assess the effects of relaxation techniques on the level of edema,
anxiety and depression in women undergoing Comprehensive Decongestive Therapy
(CDT). It concluded that relaxation
techniques reduced the anxiety and depression scores and the volume of edema in
the patients with lymphedema. Further studies are required to determine the cost-effectiveness of this intervention.
Fulltext available in PloS One
Recommendations to reduce inequalities for LGBT people facing advanced illness: ACCESSCare national qualitative interview study
Palliative Medicine; 2018 32(1) p. 23-35
Bristowe, Katherine; Hodson, Matthew; Wee, Bee; Almack, Kathryn; Johnson, Katherine; Daveson, Barbara A; Koffman, Jonathan; McEnhill, Linda; Harding, Richard
ACCESSCare is the first national study to examine in depth the experiences of LGBT people facing advanced illness. It shows that despite recent legislative change, experiences of discrimination and exclusion in health care persist for LGBT people. Ten recommendations, for health-care professionals and services/institutions, are made from the data. These are simple, low cost and offer potential gains in access to, and outcomes of, care for LGBT people.
Bristowe, Katherine; Hodson, Matthew; Wee, Bee; Almack, Kathryn; Johnson, Katherine; Daveson, Barbara A; Koffman, Jonathan; McEnhill, Linda; Harding, Richard
ACCESSCare is the first national study to examine in depth the experiences of LGBT people facing advanced illness. It shows that despite recent legislative change, experiences of discrimination and exclusion in health care persist for LGBT people. Ten recommendations, for health-care professionals and services/institutions, are made from the data. These are simple, low cost and offer potential gains in access to, and outcomes of, care for LGBT people.
End-of-life care for homeless people: A qualitative analysis exploring the challenges to access and provision of palliative care
Palliative Medicine; 2018 32(1) p. 36-45
Shulman, Caroline; Hudson, Briony F; Low, Joseph; Hewett, Nigel; Daley, Julian; Kennedy, Peter; Davis, Sarah; Brophy, Niamh; Howard, Diana; Vivat, Bella; Stone, Patrick
The aim of this study was to explore the views and experiences of current and formerly homeless people, frontline homelessness staff (from hostels, day centres and outreach teams) and health- and social-care providers, about the challenges of supporting homeless people with advanced ill health, and to make suggestions for improving care. It highlights the complexities of identifying who is palliative and the lack of appropriate services for homeless people who have high support needs, particularly in combination with substance misuse issues. Recommendation include increased collaboration between services, the promotion of in-reach into hostels and greater training and support for all professional groups.
Shulman, Caroline; Hudson, Briony F; Low, Joseph; Hewett, Nigel; Daley, Julian; Kennedy, Peter; Davis, Sarah; Brophy, Niamh; Howard, Diana; Vivat, Bella; Stone, Patrick
The aim of this study was to explore the views and experiences of current and formerly homeless people, frontline homelessness staff (from hostels, day centres and outreach teams) and health- and social-care providers, about the challenges of supporting homeless people with advanced ill health, and to make suggestions for improving care. It highlights the complexities of identifying who is palliative and the lack of appropriate services for homeless people who have high support needs, particularly in combination with substance misuse issues. Recommendation include increased collaboration between services, the promotion of in-reach into hostels and greater training and support for all professional groups.
Development and evaluation of the Dignity Talk question framework for palliative patients and their families: A mixed-methods study
Palliative Medicine; 2018 32(1) p. 195-205
Guo, Qiaohong; Chochinov, Harvey Max; McClement, Susan; Thompson, Genevieve; Hack, Tom
Effective patient-family communication can reduce patients' psychosocial distress and relieve family members' current suffering and their subsequent grief but terminally ill patients and their family members often experience great difficulty in communicating their true feelings, concerns, and needs to each other. The aims of this study were to develop a novel means of facilitating meaningful conversations for palliative patients and family members, coined Dignity Talk and to explore the anticipated benefits and challenges. The questions were endorsed by a majority of participants who felt that Dignity Talk would be valuable in promoting conversations, enhancing family connections and relationships, enhancing patient sense of value and dignity, promoting effective interaction, and attending to unfinished business.
Guo, Qiaohong; Chochinov, Harvey Max; McClement, Susan; Thompson, Genevieve; Hack, Tom
Effective patient-family communication can reduce patients' psychosocial distress and relieve family members' current suffering and their subsequent grief but terminally ill patients and their family members often experience great difficulty in communicating their true feelings, concerns, and needs to each other. The aims of this study were to develop a novel means of facilitating meaningful conversations for palliative patients and family members, coined Dignity Talk and to explore the anticipated benefits and challenges. The questions were endorsed by a majority of participants who felt that Dignity Talk would be valuable in promoting conversations, enhancing family connections and relationships, enhancing patient sense of value and dignity, promoting effective interaction, and attending to unfinished business.
Pharmacovigilance in hospice/palliative care: net effect of haloperidol for nausea or vomiting
Journal
of Palliative Medicine; 2018 21(1) p. 37-43
Digges,
Madeline; Hussein, Akram; Wilcock, Andrew; Crawford, Gregory B; Boland, Jason
W; Agar, Meera R; Sinnarajah, Aynharan; Currow, David C; Johnson, Miriam J
The objective of this study war to
explore the immediate and short-term net clinical effects of haloperidol when
treating nausea and/or vomiting in palliative care patients. The authors conclude that haloperidol
as an antiemetic provided rapid net clinical benefit with low-grade, short-term
harms.
Drugs for treating opioid-induced constipation: a mixed treatment comparison network meta-analysis of randomized controlled clinical trials
Journal
of Pain and Symptom Management; Feb 2018; vol. 55 (no. 2); p. 468-479
Sridharan, Kannan; Sivaramakrishnan, Gowri
The objective of this study was to compare available interventions for the treatment of opioid-induced constipation, using principles of network meta-analysis. The authors found the quality of evidence for the comparisons is either low or very low but concluded that subcutaneous methyl naltrexone performed better than other interventions for managing opioid-induced constipation.
Sridharan, Kannan; Sivaramakrishnan, Gowri
The objective of this study was to compare available interventions for the treatment of opioid-induced constipation, using principles of network meta-analysis. The authors found the quality of evidence for the comparisons is either low or very low but concluded that subcutaneous methyl naltrexone performed better than other interventions for managing opioid-induced constipation.
Moral distress at the end of a life: when family and clinicians do not agree on implantable cardioverter-defibrillator deactivation
Journal
of Pain and Symptom Management; 2018 55(2) p. 530-534
Steiner, Jill M; Patton, Kristen K; Prutkin, Jordan M; Kirkpatrick, James N
An implantable cardioverter-defibrillator can serve to avoid sudden death but may lead to a prolonged death from heart failure. Although ethical consensus holds that defibrillator deactivation is legal and ethical, disagreements about life prolongation may complicate decision making. The ethical, technical, and medical complexity involved in the case study presented in this article speaks to the need for clear, prospective communication involving the patient, the patient's family, and members of the care team.
Steiner, Jill M; Patton, Kristen K; Prutkin, Jordan M; Kirkpatrick, James N
An implantable cardioverter-defibrillator can serve to avoid sudden death but may lead to a prolonged death from heart failure. Although ethical consensus holds that defibrillator deactivation is legal and ethical, disagreements about life prolongation may complicate decision making. The ethical, technical, and medical complexity involved in the case study presented in this article speaks to the need for clear, prospective communication involving the patient, the patient's family, and members of the care team.
Addressing a patient's hope for a miracle
Journal
of Pain and Symptom Management; 2018 55(2) p. 535-539
Shinall, Myrick C; Stahl, Devan; Bibler, Trevor M
Ill patients may make decisions to continue aggressive life-prolonging care based on hope for a miraculous recovery, and clinicians can find goals of care discussions with these patients extremely challenging.This case presents a typology of ways patients express hope for a miracle along with analysis of the motivations and beliefs underlying such hopes and suggestions for tailored responses by palliative care providers.
Shinall, Myrick C; Stahl, Devan; Bibler, Trevor M
Ill patients may make decisions to continue aggressive life-prolonging care based on hope for a miraculous recovery, and clinicians can find goals of care discussions with these patients extremely challenging.This case presents a typology of ways patients express hope for a miracle along with analysis of the motivations and beliefs underlying such hopes and suggestions for tailored responses by palliative care providers.
The development of a 'wet leg' pathway for chronic oedema
International Journal of Palliative Nursing; 2018 24(1) p. 40-46
Morgan, Karen; Thomas, Melanie
This article presents the Chronic Oedema 'Wet Leg' Pathway which provides nurses and therapists with clear guidelines to support prompt, efficient and effective management of all patients with chronic oedema and wet legs.
Available in print in Arthur Rank Hospice Library, Cambridge
Morgan, Karen; Thomas, Melanie
This article presents the Chronic Oedema 'Wet Leg' Pathway which provides nurses and therapists with clear guidelines to support prompt, efficient and effective management of all patients with chronic oedema and wet legs.
Available in print in Arthur Rank Hospice Library, Cambridge
Psychological impairments burden and spirituality in caregivers of terminally ill cancer patients
European Journal of Cancer Care; 2018 27(1)
Lai, C; Luciani, M; Di Mario, C; Galli, F; Morelli, E; Ginobbi, P; Aceto, P; Lombardo, L
Spirituality is mostly studied in the context of terminally ill patients but this study investigates the association between spirituality, burden, and psychological state in caregivers of terminally ill cancer patients. The authors conclude that in these caregivers, higher levels of intrinsic spirituality predicted a higher amount of time devote to caregiving, and also protected against the emotional distress linked to providing assistance.
Lai, C; Luciani, M; Di Mario, C; Galli, F; Morelli, E; Ginobbi, P; Aceto, P; Lombardo, L
Spirituality is mostly studied in the context of terminally ill patients but this study investigates the association between spirituality, burden, and psychological state in caregivers of terminally ill cancer patients. The authors conclude that in these caregivers, higher levels of intrinsic spirituality predicted a higher amount of time devote to caregiving, and also protected against the emotional distress linked to providing assistance.
Wednesday, 14 February 2018
Acupuncture in hospice settings: A qualitative exploration of patients' experiences
European Journal of Cancer Care; January 2018
McPhail, P; Sandhu, H; Dale, J; Stewart-Brown, S
The aim of this study was to explore patients' experiences of acupuncture in the hospice setting. Acupuncture was found to be a highly acceptable, accessible and popular treatment with positive holistic effects reported across the domains of physical, mental and spiritual health and no serious adverse effects.
McPhail, P; Sandhu, H; Dale, J; Stewart-Brown, S
The aim of this study was to explore patients' experiences of acupuncture in the hospice setting. Acupuncture was found to be a highly acceptable, accessible and popular treatment with positive holistic effects reported across the domains of physical, mental and spiritual health and no serious adverse effects.
The acceptability and potential benefits of mindfulness-based interventions in improving psychological well-being for adults with advanced cancer: A systematic review
Complementary Therapies in Clinical Practice; February 2018 30 p.68-78
Zimmermann, Fernanda F; Burrell, Beverley; Jordan, Jennifer
This systematic review aims to describe, evaluate and synthesize the acceptability and potential benefits of mindfulness-based interventions (MBIs) for the psychological well-being of people with advanced cancers. It concludes that there is evidence of acceptability and of effectiveness, indicating potential benefit for this population.
Zimmermann, Fernanda F; Burrell, Beverley; Jordan, Jennifer
This systematic review aims to describe, evaluate and synthesize the acceptability and potential benefits of mindfulness-based interventions (MBIs) for the psychological well-being of people with advanced cancers. It concludes that there is evidence of acceptability and of effectiveness, indicating potential benefit for this population.
Psychological ideas in palliative care: behaviour change
European
Journal of Palliative Care; 2017 24(6) p. 260-265
Strachan, Jenny
There is little written about behaviour change in palliative care settings. In this article Jenny Strachan examines how encouraging patients to change certain types of behaviour – such as non-compliance with medicines, persistent reassurance seeking and strain in family relationships – comes down to understanding and adjusting the relationship between the behaviour and its reinforcers.
Fulltext available in European Journal of Palliative Care
Available in print in Arthur Rank Hospice Library, Cambridge
Strachan, Jenny
There is little written about behaviour change in palliative care settings. In this article Jenny Strachan examines how encouraging patients to change certain types of behaviour – such as non-compliance with medicines, persistent reassurance seeking and strain in family relationships – comes down to understanding and adjusting the relationship between the behaviour and its reinforcers.
Fulltext available in European Journal of Palliative Care
Available in print in Arthur Rank Hospice Library, Cambridge
What do patients with cancer and their families value most at the end of life? A critical analysis of advance care planning
International Journal of Palliative Nursing; 2017 23(12) p. 596-604
Johnson, Stephanie B; Butow, Phyllis N; Kerridge, Ian; Tattersall, Martin Hn
The findings from this study suggest that models of ACP which are constructed around patients' 'rights' to determine what happens to their bodies may do little to enhance the quality of EoL care, as patients value veracity, trust and comfort at the EoL more than autonomy. Quality EoL care should focus on paying increased attention to the relational and social aspects of care.
Johnson, Stephanie B; Butow, Phyllis N; Kerridge, Ian; Tattersall, Martin Hn
The findings from this study suggest that models of ACP which are constructed around patients' 'rights' to determine what happens to their bodies may do little to enhance the quality of EoL care, as patients value veracity, trust and comfort at the EoL more than autonomy. Quality EoL care should focus on paying increased attention to the relational and social aspects of care.
Subscribe to:
Posts (Atom)