International Journal of Palliative Nursing, May 2016, vol. 22, no. 5, p. 222-229
Van den
Heuvel, Liza Amc, Spruit, Martijn A, Schols, Jos Mga, Hoving, Ciska, Wouters,
Emiel Fm, Janssen, Daisy Ja
The results of this quantitative, cross-sectional study suggest that the most important barriers for family caregivers were related to uncertainty
about expected care and focus on staying alive instead of dying. The
facilitators were related to trust in and competence of their physician and
earlier experiences with death in their (social) environment. For most barriers
and facilitators, agreement between patients and family caregivers was fair to
moderate, suggesting an individual approach is needed to improve communication at the end of life.
Available in print in Arthur Rank Hospice, Brookfields Hospital