Palliative Medicine, 2019 33(7) p.812-822
Clabburn, Oliver; Knighting, Katherine; Jack, Barbara A; O'Brien, Mary R
The aims of this study were to investigate the views, perceptions and experiences of digital legacies with people affected by motor neurone disease. Creating a digital legacy provided a sense of purpose for people with motor neurone disease and a way to convey personality and life experiences. Bereaved young people can modify disease-related memories of the person and gain comfort from hearing and seeing videos.
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