Friday 10 January 2014

The impact on the family carer of motor neurone disease and intervention with noninvasive ventilation

Journal of Palliative Medicine, December 2013, vol./is. 16/12(1602-9)
Baxter SK, Baird WO, Thompson S, Bianchi SM, Walters SJ, Lee E, Ahmedzai SH, Proctor A, Shaw PJ, McDermott CJ

NIV was perceived as having little impact on carer burden. The data however highlighted a range of sources of other burdens relating to the physical strain of caring and role change; the challenge inherent in having time away; and problems relating to the timing of equipment and service delivery.