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BMJ Supportive & Palliative Care; Mar 2018; vol. 8 (no. 1); p. 21-24

Wilcock, Andrew; Charlesworth, Sarah

This feature in the journal provides a selection of items that have featured in the News and Latest additions section of the website in recent months.

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Available in print in Arthur Rank Hospice Library, Cambridge

Developing design principles for a Virtual Hospice: improving access to care

BMJ Supportive & Palliative Care; Mar 2018; vol. 8 (no. 1); p. 53-57
Taylor, Andrea; French, Tara; Raman, Sneha

This paper presents early-stage design work on a Virtual Hospice to improve access to services provided by Highland Hospice serving a largely remote and rural population in Scotland. A number of themes and barriers to accessing the Hospice's services were identified and, in response, an initial set of seven design principles was developed to improve prioritisation and decision making by ensuring alignment with research insights. It is suggested that this approach could be applied by other hospices facing similar challenges on delivering services in remote and rural settings.

Available in print in Arthur Rank Hospice Library, Cambridge

Management of hiccups in palliative care patients

BMJ Supportive & Palliative Care; Mar 2018; vol. 8 (no. 1); p. 1-6
Jeon, Yong Suk; Kearney, Alison Mary; Baker, Peter Graham

This article provides an evidence-based approach overview of the causes and treatment of this debilitating condition for such patients, with a management algorithm.

Available in print in Arthur Rank Hospice Library, Cambridge

Why is Meaning-Centered Group Psychotherapy (MCGP) effective? Enhanced sense of meaning as the mechanism of change for advanced cancer patients

Psycho-oncology; Feb 2018; vol. 27 (no. 2); p. 654-660
Rosenfeld, Barry; Cham, Heining; Pessin, Hayley; Breitbart, William

The authors of this study looked at the data from two randomised controlled trials to advance understanding of the effectiveness of MCGP.  They suggest the findings support MCGP as a way of enhancing a sense of meaning which improves quality of life and decreases psychological distress.

Palliative care in dementia

Palliative Medicine; March 2018

This special issue of Palliative Medicine includes research aimed at increasing knowledge in the field of dementia. Included are both quantitative and qualitative studies that demonstrate sophisticated methodology and include at least one negative trial (Boogaard et al.2) because it's important to know what works and what does not. It includes the following topics:

• The effect of two feedback strategies on perceived quality of end-of-life care and comfort in dying nursing home residents with dementia.
• Effects on pain of a stepwise multidisciplinary intervention (STA OP!) that targets pain and behavior
• How palliative care is understood in the context of dementia

View the full contents in Palliative Medicine

Palliative care for those with neurological diseases

Palliative Medicine April 2018 32(4)

This special issue of Palliative Medicine includes research aimed at increasing knowledge in the field of neurological diseases.  It includes the following topics:

• Interventions for informal caregivers of people with motor neurone disease
• Views about assisted dying of people with Huntingdon's disease
• Palliative care triggers in progressive neurodegenerative conditions

Ten tips nephrologists wish the palliative care team knew about caring for patients with kidney disease

Journal of Palliative Medicine; Apr 2018; vol. 21 (no. 4); p. 546-551
Bansal, Amar D; Leonberg-Yoo, Amanda; Schell, Jane O; Scherer, Jennifer S; Jones, Christopher A

Written by nephrologists and palliative care clinicians, this article will help PC providers to have a richer understanding of kidney disease-related symptom burden, disease trajectory, prognosis, and barriers to hospice enrollment for patients with CKD and end-stage renal disease.

Diuretics combined with compression in resistant limb edema of advanced disease-a case series report

Journal of Pain and Symptom Management 2018; vol. 55 (no. 4); p. 1179-1183
Gradalski, Tomasz

This was a prospective observational study of 19 patients with severe bilateral leg edema resistant to parenteral diuretic therapy.  Clinically meaningful results were reported  leading the author to conclude that the combination of compression therapy with hypersaline diuretics could be considered as a valuable option for refractory cases of limb edema in advanced disease.

Targeted palliative care day therapy interventions using modified MYMOP2 tool can improve outcomes for patients with non-malignant diseases

International Journal of Palliative Nursing; Feb 2018; vol. 24 (no. 2); p. 92-95
Monnery, Daniel; Webb, Esther; Richardson, Lorna; Isaac, Jane; Chapman, Laura

The authors suggest that using the modified MYMOP2 tool to tailor and measure the outcome of holistic day therapy services results in a more sustained improvement for patients with non-malignant disease.

The efficacy of complementary therapy for patients receiving palliative cancer care

International Journal of Palliative Nursing; Mar 2018; vol. 24 (no. 3); p. 146-151
Cedar, S H; White, Melanie; Atwal, Anita

60 patients participated in this study to evaluate the effect of complementary therapies on patient well-being and to explore concerns and factors that influenced well-being in order to improve service provision. 

The nourishing role: exploratory qualitative research revealing unmet support needs in family carers of patients with advanced cancer and eating problems

Cancer Nursing; Mar 2018; vol. 41 (no. 2); p. 131-138
Hopkinson, Jane B

This study revealed that family carers needed information and support not only on how to provide nutritional care for the patients but also to manage their own nutritional risk.

Deactivation of implantable cardioverter-defibrillators in heart failure: a systematic review

Journal of Hospice and Palliative Nursing; Feb 2018; vol. 20 (no. 1); p. 63-73
Herman, Mark; Horner, Kathryn; Ly, Julie; Vayl, Yelizaveta

The aim of this systematic review was to identify problems that may delay the deactivation of implantable cardioverter-defibrillators and address possible considerations for their management to improve end-of-life care.  The authors conclude that ongoing discussions with patients are needed as well as the development of a protocol or policy to guide care at the end of life.

Psychological ideas in palliative care: distress, adjustment and coping

European Journal of Palliative Care; Jan 2018; vol. 25 (no. 1); p. 26-31

Jenny Strachan

In the latest in this Psychology in Palliative Practice series, Jenny Strachan looks at distress, coping and adjustment and considers when is a reaction normal and when does it become a problem.

Fulltext available in European Journal of Palliative Care (contact library for login details)

Available in print in Arthur Rank Hospice Library, Cambridge

Barriers to palliative care for people with severe mental illness: exploring the views of clinical staff

European Journal of Palliative Care; Jan 2018; vol. 25 (no. 1); p. 20-25
Jerwood, Jed; Phimister, Diane; Ward, Gillian; Holliday, Nikki; Coad, Jane

The first in a series of articles exploring inequalities in palliative care provision looks at end of life care for people with severe mental health illness.  It considers the challenges and the opportunities for improving high quality, personalised care for all.

Fulltext available in European Journal of Palliative Care (contact library for login details)
Available in print in Arthur Rank Hospice Library, Cambridge

'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer 2018 March 29

Steven Dodd, Matt Hill, Nick Ockenden, Guillermo Perez Algorta, Sheila Payne, Nancy Preston, Catherine Walshe

The aim of this research was to study the impact of a volunteer-provided befriending service for people in the last year of life and their families.  The participants reported feeling less lonely, isolated and depressed or anxious.

Fulltext available in Supportive Care in Cancer

Red blood cell transfusion in adult palliative care: a systematic review

Transfusion 2018, 58 (1): 233-241

Nicolas Chin-Yee, Joshua Taylor, Kaitlyn Rourke, Danika Faig, Alexandra Davis, Dean Fergusson, Elianna Saidenberg

The authors of this review concluded that although RBC transfusions might provide some relief and improve subjective well-being, the size and magnitude of the effects and the risks are unclear with no high quality evidence to support and guide the use of this procedure in the palliative care population.