BMC Palliative Care; 2018, 17 (1), 63
Mills, Jason; Wand, Timothy; Fraser, Jennifer A
The aim of the present study was to explore the
meaning and practice of self-care as described by palliative care nurses and
doctors in Australia. The
findings provide a detailed account of the context and complexity
of effective self-care practice previously lacking in the literature.
Fulltext available in BMC Palliative Care
A current awareness bulletin produced by the library service at Arthur Rank Hospice
Friday 18 May 2018
Palliative care for homeless people: a systematic review of the concerns, care needs and preferences, and the barriers and facilitators for providing palliative care
BMC Palliative Care; 2018, 17 (1) 67
Klop, Hanna T; de Veer, Anke J E; van Dongen, Sophie I; Francke, Anneke L; Rietjens, Judith A C; Onwuteaka-Philipsen, Bregje D
This systematic review aims to summarize evidence about the concerns, palliative care needs and preferences of homeless people, as well as barriers and facilitators for delivering high quality palliative care.
Fulltext available in BMC Palliative Care
Klop, Hanna T; de Veer, Anke J E; van Dongen, Sophie I; Francke, Anneke L; Rietjens, Judith A C; Onwuteaka-Philipsen, Bregje D
This systematic review aims to summarize evidence about the concerns, palliative care needs and preferences of homeless people, as well as barriers and facilitators for delivering high quality palliative care.
Fulltext available in BMC Palliative Care
Family carers' experiences of coping with the deaths of adults in home settings: A narrative analysis of carers' relevant background worries
Palliative
Medicine; 2018, 32 (5), 950-959
Thomas, Carol; Turner, Mary; Payne, Sheila; et al
The aim of this qualitative cross-sectional observational study was to illustrate the relevance of 'relevant background worries' in family carers' accounts of caring at home for a dying adult. Four case studies are presented where the worries constituted psychosocial factors that impacted on caregivers' actions and emotional well-being. Two themes are discussed: (1) whether relevant background worries are important enough to be identified and responded to and (2) how such worries could be picked up and managed by professionals. It is argued that the quality of clinical practice could be improved if specialist palliative care teams in community contexts both identified and responded to significant support needs associated with family carers' relevant background worries.
Thomas, Carol; Turner, Mary; Payne, Sheila; et al
The aim of this qualitative cross-sectional observational study was to illustrate the relevance of 'relevant background worries' in family carers' accounts of caring at home for a dying adult. Four case studies are presented where the worries constituted psychosocial factors that impacted on caregivers' actions and emotional well-being. Two themes are discussed: (1) whether relevant background worries are important enough to be identified and responded to and (2) how such worries could be picked up and managed by professionals. It is argued that the quality of clinical practice could be improved if specialist palliative care teams in community contexts both identified and responded to significant support needs associated with family carers' relevant background worries.
Tactile massage reduces rescue doses for pain and anxiety: an observational study
BMJ Supportive & Palliative Care; 2018, 8(1) 30-33
Pedersen, Karina; Björkhem-Bergman, Linda
This was an observational study at a hospice ward in Sweden in which forty-one palliative patients were offered TM, at an average of three treatments per patient. Before and after every treatment, self-assessed pain, well-being and anxiety according to the Edmonton Symptom Assessment Scale (0-10) were recorded. The authors report that TM reduced the need for administration of rescue doses for pain and anxiety and improved well-being, although they suggest larger randomised studies with parallel control groups are needed to confirm the findings.
Available in print in Arthur Rank Hospice Library, Cambridge
Pedersen, Karina; Björkhem-Bergman, Linda
This was an observational study at a hospice ward in Sweden in which forty-one palliative patients were offered TM, at an average of three treatments per patient. Before and after every treatment, self-assessed pain, well-being and anxiety according to the Edmonton Symptom Assessment Scale (0-10) were recorded. The authors report that TM reduced the need for administration of rescue doses for pain and anxiety and improved well-being, although they suggest larger randomised studies with parallel control groups are needed to confirm the findings.
Available in print in Arthur Rank Hospice Library, Cambridge
Persistent inequalities in Hospice at Home provision
BMJ Supportive & Palliative Care; February 2018
Buck, Jackie; Webb, Liz; Moth, Lorraine; Morgan, Lynn; Barclay, Stephen
The aim of this study was to describe the nature and scope of a new Hospice at Home (H@H) service and to identify its equality of provision. Results showed that demand outstripped supply with twice as many night care episodes requested as were provided. Inequalities in access to the service related to underlying diagnosis and socioeconomic status. The authors conclude that there is significant unmet need and potentially large latent demand for the H@H service.
Fulltext available in BMJ Supportive and Palliative Care
Available in print in Arthur Rank Hospice Library, Cambridge
Buck, Jackie; Webb, Liz; Moth, Lorraine; Morgan, Lynn; Barclay, Stephen
The aim of this study was to describe the nature and scope of a new Hospice at Home (H@H) service and to identify its equality of provision. Results showed that demand outstripped supply with twice as many night care episodes requested as were provided. Inequalities in access to the service related to underlying diagnosis and socioeconomic status. The authors conclude that there is significant unmet need and potentially large latent demand for the H@H service.
Fulltext available in BMJ Supportive and Palliative Care
Available in print in Arthur Rank Hospice Library, Cambridge
Integrating palliative care into neurology services: what do the professionals say?
BMJ Supportive & Palliative Care, 2018, 8 (1) 41-44
Hepgul, Nilay; Gao, Wei; Evans, Catherine J; et al
Here the authors present survey results describing the current levels of collaboration between neurology and palliative care services and exploring the views of professionals towards a new short-term integrated palliative care service (SIPC). They suggest their results demonstrate the opportunity to increase collaboration between the services for people with progressive neurological conditions, and the acceptability of SIPC as a model to support this.
Hepgul, Nilay; Gao, Wei; Evans, Catherine J; et al
Here the authors present survey results describing the current levels of collaboration between neurology and palliative care services and exploring the views of professionals towards a new short-term integrated palliative care service (SIPC). They suggest their results demonstrate the opportunity to increase collaboration between the services for people with progressive neurological conditions, and the acceptability of SIPC as a model to support this.
Prevalence of hyponatremia in inpatients with incurable and life-limiting diseases and its association with physical symptoms-a retrospective descriptive study
Supportive
Care in Cancer; 2018, 26 (1) 213-222
Kremeike, Kerstin; Wetter, Ricarda; Voltz, Raymond; et al
This study aims to describe the prevalence of hyponatremia, associated symptoms, and symptom intensity in inpatients with hyponatremia receiving specialist palliative care (SPC). More than one third of all SPC patients showed a hyponatremia, and the hyponatremia grade was associated with symptom burden and symptom intensity.
Kremeike, Kerstin; Wetter, Ricarda; Voltz, Raymond; et al
This study aims to describe the prevalence of hyponatremia, associated symptoms, and symptom intensity in inpatients with hyponatremia receiving specialist palliative care (SPC). More than one third of all SPC patients showed a hyponatremia, and the hyponatremia grade was associated with symptom burden and symptom intensity.
Patient-centred goal setting in a hospice: a comparative case study of how health practitioners understand and use goal setting in practice
International Journal of Palliative Nursing; 2018, 24 (3) 115-122
Boa, Sally; Duncan, Edward; Haraldsdottir, Erna; Wyke, Sally
This was a comparative case study of 10 healthcare practitioners in one hospice in Scotland. From the results, the authors note that goal setting focused around what was seen as important from the health practitioner's perspective, rather than being patient-centred. They concluded that a more explicit, person-centred goal setting process may support practitioners more consistently in helping patients to identify their priorities and enhance their quality of life.
Boa, Sally; Duncan, Edward; Haraldsdottir, Erna; Wyke, Sally
This was a comparative case study of 10 healthcare practitioners in one hospice in Scotland. From the results, the authors note that goal setting focused around what was seen as important from the health practitioner's perspective, rather than being patient-centred. They concluded that a more explicit, person-centred goal setting process may support practitioners more consistently in helping patients to identify their priorities and enhance their quality of life.
Tuesday 1 May 2018
My future wishes: Advance Care Planning (ACP) for people with dementia in all care settings
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NHS England, 2018
This document aims to assist practitioners, providers and
health and social care commissioners create opportunities for people living
with dementia to develop an Advance Care Plan.
Please note the any changes that are made to this document in the future will be completed on the digital copy which can be found here:
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